Explore the Agenda

8:00 am Check in & Coffee

8:50 am Chair’s Opening Remarks

Reporting the Right Metrics Across Stakeholders to Earn Trust, Influence Decisions & Accelerate Progress

9:00 am Moving Beyond Company-Facing Metrics: How to Assess the Quality & Impact of Engagement from the Patient Perspective

Director & Co-Founder, Flutters & Strutters
  • Exploring what patients and HCPs consider meaningful beyond enrollment and retention
  • Discussing how lived experience can be translated into measurable indicators without overburdening participants
  • Reflecting on gaps between what patients want to know about engagement and what 
  • companies currently report

9:30 am Aligning Patient Engagement Metrics with Regulatory & Payer Expectation

Director, Public Affairs, Northern Cluster, Kyowa Kirin

Navigating current trends in regulatory approvals and payer decisions that increasingly prioritise the patient voice

Incorporating new evidence types that reflect patient preferences into development and value strategies

Building a holistic approach to patient engagement across stakeholders to maximise impact and alignment

10:00 am Fireside Chat: What Does the C-Suite Need to See to Champion Patient Engagement?

Director, Patient Advocacy, Kyowa Kirin
Patient Group Engagement Lead, UCB
  • Identifying engagement KPIs that influence C-suite decisions including time-to-market, recruitment efficiency, and portfolio value
  • Discussing how to identify relevant KPIs that capture impact across drug discovery lifecycle and across differing therapy areas
  • Navigating how perceptions of impact and value vary across functions

10:30 am Morning Break & Networking

Patient-Centred Metrics in Practice: From Data to Decisions

11:30 am Developing & Deploying a Digital Platform to Measure the Value of Patient Engagement at Pfizer

Global Director, Patient Advocacy & External Partnerships, Pfizer
  • Outlining Pfizer’s journey co-creating a metrics framework with patients, carers, academics, and internal stakeholders
  • Sharing the methodology behind building a digital platform enabling prospective and retrospective measurement of patient engagement impact

12:00 pm Embedding Patient Voices into Measurable Outcomes: Lessons from Rare Disease & Psychiatry

Chief Executive Officer & Co-Founder, Serenatis Bio
  • Translating lived experience into actionable metrics that inform trial design and demonstrate patient-centered value
  • Overcoming engagement barriers in rare disease and mental health, from stigma to delayed diagnosis, to improve recruitment and retention
  • Implementing a ready-to-use checklist for embedding patient perspectives into everyday research decisions and regulatory interactions

12:30 pm Lunch Break & Networking

1:30 pm Practical Session: Moving Beyond Words to Build a Multi-Metric Framework That Embeds Patient Engagement into Drug Development

Global Head of Integrated Patient Services, Sanofi
Senior Program Director, PFMD
Associate Program Director, The Synergist

As more life sciences organisations formalise their patient engagement commitments, the real challenge lies in turning high-level intentions into structured, measurable action. This interactive session, led by PFMD, combines hands-on exercises with insights from a global review of industry charters to help you build an engagement framework grounded in accountability and real-world impact.

You’ll work through diverse scenarios – across indications, modalities, and company scales- to design an adaptable, multi-metric model you can bring back to your team.

Key Takeaways:

  • Identify fit-for-purpose metrics that reflect your organisation’s priorities and the needs of diverse patient communities
  • Learn how industry leaders are embedding metrics into patient engagement charters to track progress and drive meaningful change
  • Explore PFMD’s cross-sector efforts to standardise measurement and design frameworks that evolve with your organisation
  • Develop a stakeholder-aligned strategy for communicating value, accountability, and success
  • Leave with a practical, scalable template to support consistent measurement and improvement across the product lifecycle

By the end, you’ll have a flexible, actionable framework to bring back to your team – helping to standardise measurement and clearly demonstrate the impact of patient engagement across your projects.

3:50 pm Chair’s Closing Remarks

4:00 pm End of Conference