Maddalena Benivento

Associate Program Director The Synergist

Maddalena is an Associate Program Director at PFMD, focusing on organizational governance, monitoring, and evaluation processes related to the impact, outcomes, and quality of patient engagement. She works on leveraging patient experience data supporting the co-creation of cross-functional solutions that accelerate the use of data to improve patient involvement, identify unmet patient needs, and inform healthcare decision-making through the lens of lived experience.

Seminars

Tuesday 2nd December 2025
Unlocking the Value of Patient Experience Data: From Research to Regulation
1:00 pm

This interactive pre-meeting workshop will explore how Patient Experience Data (PED) is gaining traction across the product lifecycle – from early research and development through to regulatory submissions and HTA processes. Drawing on PFMD’s global, multi-stakeholder initiatives- including inspiring examples from our collaborators and 

Made with Patient Award – this session will share practical tools and high-level insights into how PED is being integrated in real-world settings.

With growing alignment across sectors and the support of emerging policy frameworks – including the highly anticipated EMA reflection paper – participants will gain a forward – looking view of how PED is helping shape more patient-centered decision-making.

Thursday 4th December 2025
Practical Session: Moving Beyond Words to Build a Multi-Metric Framework That Embeds Patient Engagement into Drug Development
1:30 pm

As more life sciences organisations formalise their patient engagement commitments, the real challenge lies in turning high-level intentions into structured, measurable action. This interactive session, led by PFMD, combines hands-on exercises with insights from a global review of industry charters to help you build an engagement framework grounded in accountability and real-world impact.

You’ll work through diverse scenarios – across indications, modalities, and company scales- to design an adaptable, multi-metric model you can bring back to your team.

Key Takeaways:

  • Identify fit-for-purpose metrics that reflect your organisation’s priorities and the needs of diverse patient communities
  • Learn how industry leaders are embedding metrics into patient engagement charters to track progress and drive meaningful change
  • Explore PFMD’s cross-sector efforts to standardise measurement and design frameworks that evolve with your organisation
  • Develop a stakeholder-aligned strategy for communicating value, accountability, and success
  • Leave with a practical, scalable template to support consistent measurement and improvement across the product lifecycle

By the end, you’ll have a flexible, actionable framework to bring back to your team – helping to standardise measurement and clearly demonstrate the impact of patient engagement across your projects.

Maddalena Benivento