Carole Scrafton
Patient, Health Advocate, Social Media Coordinator & Website Manager Flutters & Strutters
Seminars
Thursday 4th December 2025
Moving Beyond Company-Facing Metrics: How to Assess the Quality & Impact of Engagement from the Patient Perspective
9:00 am
- Exploring what patients and HCPs consider meaningful beyond enrollment and retention
- Discussing how lived experience can be translated into measurable indicators without overburdening participants
- Reflecting on gaps between what patients want to know about engagement and what
- companies currently report
